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•Thursday, July 20th
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• 2006 22q13 Deletion Conference Agenda •
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All day
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• Genetic evaluations for new families.
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Afternoon
4:00pm - 8:00pm
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• Registration. (outside Greenbriar Room)
• Foundation Board meeting.
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Evening
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• Informal family welcome. (Hotel Atrium) |
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• Friday, July 21st
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All day
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• Genetic evaluations for new families.
• Scheduled family interviews with Steve Shaw.
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8:00am - 1:00pm
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• Registration continues. (outside Greenbriar Room)
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9:00am - 9:30am
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• New family welcome. - Sue Lomas, Foundation President (Greenbriar Room)
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9:30am -11:30am
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• Chromosome Studies. - Katy Phelan (Greenbriar Room)
• Clinical Characteristics. - Curtis Rogers (Greenbriar Room)
• Molecular Overview. - Mike Friez (Greenbriar Room)
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11:30am - 12:30pm
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• Box lunches available. (Homestead Room)
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1:00pm -1:30pm
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• General session welcome, introductions. - Sue Lomas, Foundation President (Greenbriar Room)
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1:15pm - 3:15pm
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• Sibling session No. 1 (Ages 5-9). - Amelia Woo (Columbia Room)
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1:30pm - 2:30pm
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• Summary of 22q13 Deletion Syndrome data collection. - Katy Phelan & Curtis Rogers (Greenbriar Room)
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2:30pm - 5:30pm
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• Sensory Processing: Making Connections - Marty Zonca (Greenbriar Room)
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3:30pm - 5:30pm
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• Sibling session No. 2 Ages (10-13) - Amelia Woo (Columbia Room)
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6:00pm - 7:30pm
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• Dinner (Pinehurst Room)
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7:30pm - 8:30pm
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• Committee meetings: Fundraising, Communications, Planning, Research, Regional Representatives. (Greenbriar Room)
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7:30pm - 10pm
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• Time to relax. Entertainment compliments of a DJ. (Pinehurst Room) |
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Saturday, July 22nd
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All day
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• Genetic evaluations for new families.
• Scheduled family interviews with Steve Shaw.
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9:00am - 10:00am
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• Legal issues: Guardianship, conservators hip, special needs trust. - Rick Wood (Green briar Room)
• Communication: Part 1. The Early Years, Techniques to Establish Beginning Communication. - Debra Dasher (Columbia Room)
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10:00am - Noon
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• Etiolating for Children with Special Needs. - Judy Coucouvanis (Greenbriar Room)
• Dads-to-Dads session. - Nick Assendelft, Rory Jones & Dan Currell. (Columbia Room)
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Noon - 1:30pm
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• Lunch Break (Pinehurst Room)
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1:30pm - 2:30pm
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• What Children with Phelan-McDermid Syndrome are Teaching Us: Educational, Psychological and Neuropsychological. - Steve Shaw (Greenbriar Room)
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2:30pm - 3:15pm
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• Research Update. - Mike Friez & Randy Riddle (Greenbriar Room)
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3:30pm - 5:00pm
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• Open discussion about medical issues, therapies. (Greenbriar Room)
• Communication: Part 2. Intermediate Level, Approaches for School, Augmentative Communication and Language Development. - Debra Deshur (Columbia Room)
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6:00pm - 8:00pm
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• Cookout, baseball game for children, networking. (Outdoors - weather permitting). |
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Sunday, July 23rd
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All day
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• Genetic evaluations for new families (if necessary).
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8:00am - 9:00am
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• Faith sharing. - Randy Riddle (Greenbriar Room)
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9:00am to Noon
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• General session: Conference evaluations.
• Committee updates: Fundraising, Planning, Communication, Membership. Conference and Finances.
• Planning for 2008.
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12 Noon
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• Conference ends.
• Foundation Board meeting. (Greenbriar Room)
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Free Time
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Even though the conference has officially ended, please feel free to relax and continue talking with other parents if you would like. After such an intensive stay, this is a nice time to sit back. Thank you all for coming. |
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