It is the mission of the 22q13 Deletion Syndrome / Phelan-McDermid Syndrome Support Group to build an alliance of family support for individuals with the chromosome 22q13 deletion and to provide families and professionals an opportunity for scientific education and informational exchange.

• Provide the latest research and information about 22q13 Deletion Syndrome/Phelan-McDermid Syndrome.
• Reach out to families of newly diagnosed individuals by providing answers, support and people to contact.
• Encourage the free flow of ideas among Support Group members as well as professionals interested in the syndrome.
• Help the 22q13 Deletion Foundation to raise money for the biennial Support Group conference and other initiatives.
• Promote the initiatives of the Support Group and the Foundation’s Board of Directors.

By fulfilling these goals, www.22q13.org will be the most comprehensive destination on the Internet for information about 22q13 Deletion Syndrome / Phelan-McDermid Syndrome.