Phelan-McDermid Support Group marks 10th anniverary

The Phelan-McDermid Support Group marked its 10th anniversary at its conference July 24-27 in Greenville, S.C. This was the sixth time the group met since its founding in 1998, which was the first formal gathering of families who have children affected by 22q13 Deletion Syndrome. The conference also capped off Phelan-McDermid Syndrome Awareness Week, which was proclaimed in nine states and Canada.

More than 100 families -- totaling more than 450 people -- attended this year's Support Group meeting at the Embassy Suites. Ten years ago, our group started out at the same hotel with 20 out of the 25 families that were diagnosed at the time getting to know each other. A number of those original families attended this year's conference. test


Last Updated on Tuesday, 17 August 2010 21:28
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