Foundation Website Disclaimer

Phelan-McDermid Syndrome Foundation Chromosome 22 Central are volunteer organizations. Every effort has been made to ensure the accuracy of the information provided on this website.

Links to other resources are provided solely as a means of further information, and the Phelan-McDermid Syndrome Foundation does not endorse any such resources.

Any information provided to members or the general public is provided for educational purposes only, and is not intended to replace professional advice from doctors or therapists.Phelan-McDermid Syndrome Foundation representatives, correspondents or board members DO NOT under any circumstances offer medical advice. Our group’s purpose is to strictly offer support and basic information. We are run by a group of caring parents and are not trained to offer advice. All information we provide is strictly on an information basis only, and should be shared with your own medical professionals.

It is important to understand that when reading facts about specific disorders, not all people affected will be the same. As with any disorder, there are degrees of severity, and it is important for parents to understand these facts. It is recommended that information you receive from Phelan-McDermid Syndrome Foundation be shared with professionals for comments or advice.

Any concerns regarding the content of our web site can be directed to This e-mail address is being protected from spambots. You need JavaScript enabled to view it .


Effective Date: September 1, 2009

Last Updated on Monday, 08 February 2010 21:09
Copyright © 2017 Phelan-McDermid Syndrome Foundation. All Rights Reserved.