.............................................."An International Alliance of Support and Science"
Mark your calendar
Make a note of these significant upcoming events.
August Shopping online for a special event or birthday? Shop iGive.com or Amazon Smiles and choose Phelan-McDermid Syndrome Foundation as your charity of choice. Find out more here
September World Alzheimer's Month
Sept. 15 Take a few minutes to look over the valuable family support and medical information under the Resources link in the menu list on the left side of this page
Sept. 21 World Alzheimer's Day
Sept. 22-23 Global Genes Rare Patient Advocacy Summit, Huntington Beach, California. Details here.
Sept. 28-Oct. 1 National Society of Genetic Counselors, Seattle, Washington
October Learning Disabilities Awareness Month; Disabilities Awareness Month
Oct. 10 Did you update your preferences in the PMS International Registry? Contact Jackie Malasky.
Oct. 15 Rare Disease Day New York. PMS families will be staffing an informational table.
Oct. 18-22 The American Society of Human Genetics, Vancouver, Canada
Nov. 7 Annie’s 7th Annual Golf Classic at Trophy Club Country Club in the Dallas-Fort Worth, Texas, area. For event information, donations or sponsorships, contact Veronica Frunzi.
Nov. 15-17 World Orphan Drug Congress Europe, Sheraton Brussel Hotel, Brussels, Belgium
Dec. 1 Did you know? Signing up to participate in the International Registry is not the same as signing up to be a member of the PMS Foundation. For the registry, go here. For Foundation membership, go here. Both are FREE!
Dec. 1-2 New England Regional Genetics Group, Woburn, Massachusetts
Dec. 25 Christmas
Feb. 4 Jackson's Trivia Night. Details to come.
Feb. 28 Rare Disease Day