welcome...
COMPLETE DR. KATY PHELAN'S 2008 QUESTIONAIRE!

Welcome to the Official Web Site of Phelan-McDermid Syndrome and 22q13 Deletion Foundation.

We are a growing, worldwide network of loving, caring parents and caregivers who are dedicated to making sure our children achieve the most that they can, and then some.

If you are a family with a child who has been recently diagnosed with Phelan-McDermid Syndrome, the 22q13 Deletion Foundation would like to welcome you. We are here to help.

On this site you will find a trove of helpful information on a range of topics affecting your child.

You will also find a great support network to help you to navigate to what lies ahead.
Latest 22q13 Support group NEWS -
MARK YOUR CALENDARS:
HERE ARE THE DATES FOR OUR 2008 CONFERENCE!
The Foundation is pleased to announce the 6th Biennial 22q13 Deletion Foundation Support Group Conference, once again to be held at the Embassy Suites in Greenville, SC. This year's conference is expected to draw 500 people from around the world.

The conference dates and times are 9am Friday, July 25 through 12 Noon on Sunday, July 27, 2008. Conference registration will begin on-site in Greenville on Thursday the 24th (time has yet to be determined). There will be an informal get-together Thursday night in the atrium area. The nightly hotel room rate for our group is $119 per night, plus tax.

While we anticipated moving our group to a larger facility in 2008, we received tremendous positive feedback from our members about the hotel in Greenville. We have worked with the hotel to accommodate our group size and determined we can return in 2008.

The 2008 22q13 Deletion Foundation Conference registration is now open. To register and book your hotel room, click on the link.

tell me more...
2006 Conference archive.

tell me more...

LOOKING FOR A GREAT GIFT IDEA?
ORDER SUPPORT GROUP TOTE BAGS AND SHIRTS!
Our high-quality logo shirts and roomy tote bags make wonderful gifts, increase awareness of Phelan-McDermid Syndrome and raise money for our Foundation.

They are a wonderful way to spread the word about Phelan-McDermid Syndrome and the 22q13 Deletion Foundation. They even have our Web site address on them!